Today was a good day.
The boys came off of their EEG. Just in time too, both boys had a few tender spots from having been on it for nearly 5 days.
Here’s a quick shot of each before we took them off:
We were so glad to be able to get them out and cuddle…so we did just that. Poor L is still pretty puffy, but he looked better today than he did yesterday. He still doesn’t look like himself, but he is getting closer.
Neurology is in agreement that we need to focus on medicines that can be given orally, (and therefore can be useful at home), so we were also able to take out L’s IV today. They are still trying to figure out if we can do better with the boys’ seizure management. Both are now taking Topamax as a 3rd medication. We will do a “short term” EEG later in the week to see if it had any impact. I know better than to believe it will only last one hour, but hopefully it will be less than five days. Sometimes…babies just need to be held, and loved like babies.
We took some two week photos today, but I’d really like to give L a chance to look like L before we make those “official”. They also perked up a lot during the day today, so maybe by tomorrow we’ll be seeing eyes again on a regular basis.
Mom and I went back this evening to give them their baths and change their outfits. It felt good to do a little bit of “normal”. And by “good” I mean “fantastic”. And by “normal” I mean…”NICU Normal”.
Today’s nurse also unhooked L and helped us get the boys side by side. It was so special to see these precious guys together.
Yayyy! I knew as soon as I read the heading it was good :)) they are too adorable for words! Nothing beats a mother’s cuddle♡
Sheila Blevins said:
Yes – sometimes babies just need to be loved and cuddled – and Mothers need it as much or more than the babies do. L and N have stolen many hearts – including mine. Love and prayers.
Pamela Surber said:
So good to see N and L together..I know that have been missing each other…..Give them an extra tight hug from Aunt Pam. I feel in love the second that I saw them….Hope to hold them the next time..Take care of yourself….I had so much fun with Karson and his cousins Mon…..Bryson had a blast playing with them…God is good……..Lots of love to the family..
Carolyn Cress said:
That is so precious!
Beverlee Dowdy said:
LOVE AND CUDDLE what a wonderful thing to be able to do. N and L know what that is. Love the pictures, they just get sweeter! Prayers for all continue. Give them a little pat and tell them God is GREAT from Brad and I. ❤