Time for an update!  I want to play catch up on the events and visitors over the last few days.

Since our last update, the boys have transitioned to water baths:

(L)  This is awful!

(L) This is awful!

(L)  Never mind...kind of nice.

(L) Never mind…kind of nice.

Nolan loved it right away!

N loved it right away!

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The boys also met new people and had visits from some familiar arms!

Granddad and L

Granddad and L

Grandma and N

Grandma and N

Nana and L

Nana and L

Pam and L

Pam and L

Jimmy and N

Jimmy and N

James and N

James and N

Story time?

Story time?

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J and I were able to enjoy a dinner night out together, and a Saturday morning alone with the boys.  I then went home with him to visit K and get in a little bit of normal.

J came for a visit!

J came for a visit!

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J and K working hard.

J and K working hard.

Other updates:

N has tried room air twice…and failed.  He is getting the smallest amount of oxygen they can give.  We joked we might as well come blow air in his face once an hour.  But for some reason, if you take it away…his levels drop.

Both boys are eating better.  Today, L finished two bottles, N finished one, and they both ate at least a little each time.

I’ll have bigger news tomorrow.  We have a care conference at 1:00 to discuss the goals to go home, steps to get there, and what home will look like.

Homeward bound…hopefully sooner rather than later.

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