I had my checkup today. (I’m doing well by the way).
I crammed myself in to some non maternity jeans and made my way to the same office where J and I first went for a second opinion, and found “our team”.
There was something special about being back in the office and back with the people who helped us so much during the end of the pregnancy. The ultrasound tech who skillfully assessed that the boys did in fact have at least part of a vermis and a corpus callosum. The Doctor who first mentioned Lissencephaly to us. They held us when we cried. They celebrated with us when there were small victories. They called my boys by name.
It was a surprise to NO ONE that I cried again today.
Only today, the tears were tears of joy, because we were talking about two precious boys who are still here. Who just celebrated their one month birthday. Who might just make it home before Thanksgiving. There were also tears of gratitude, because they helped us know what was coming. As a result, we feel we were as ready as we could be…and rather than spending one minute of the boys’ lives panicking over tough news…we just love them every minute, celebrate every milestone, and support them through every valley.
My incision is healing well, but there will always be a small scar. Who knows when my stomach will look normal, or if/when the spider web of battle scars will disappear. But one thing is for certain, any hint of a physical scar will be long outlasted by the emotional and spiritual proof of these boys, this journey, and the impression they’ve made upon my heart.
I know we’ve not met but I attend church with your parents in Eubank. You and your family are such a blessing! You are always in our prayers and never far from our thoughts. I know there will be tough days ahead but God will be with you all every step of the way. If there is ever anything we can do for you, your family, or your parents just ask and we will be there for you. In Christ’s love,
Mary Ann Parker
They/you have made an impression on my heart and in my life! Prayers always. ❤ you!
I know you don’t know me and we may never meet. You have been an inspiration to me. I know the journey is a tough one but your faith in God will see you though. Your celebration of your boys life rather than focusing on the worst is wonderful! I pray for your family often and anxiously wait for your next update. May God continue to give you strength and victories to celebrate.
As others have let on, you have made an impression on so many hearts by sharing your story! There isn’t a day that goes by I don’t think of “L and N” and in turn pray for them and your family. Your writings have also served as inspiration of how to graciously handle the trials of life as a true christian! Thank you.
Melody, You absolutely BLESS me each time I read your blog. I am so thankful to God for your faith, your strength and your dedication. You are an inspiration and truly a wonderful mother!!! I pray for you,J and the boys as you prepare to go home and pray that you will be home for a Thanksgiving!!!!