When no one else is around, I talk to the boys a lot. Sometimes it is nonsense. Sometimes it is what I’m doing (which could also be nonsense). Sometimes it is deeper stuff. What I hope for them. How few things in life are going to come easy for them. But how having to work for something makes it that much sweeter. How we all believe in them. And also how we love them exactly as they are.
I’ve warned them that life may not be easy. That if they want to beat the odds, and work their way out of a pretty poor prognosis, that life might be more “work” and less “play”. They will need to have their game faces on…all of the time.
I’d like to show you N’s game face:
That’s not his prettiest look, so let me add some context.
I had N on his belly for some tummy time. His arms and legs were tucked. They are able to lift and turn their heads in tummy time. I’m thrilled with that, and let them practice it on the floor, and on our chests when we have a chance. N threw in a little surprise this time though. With some grunting and struggling…he rolled over on to his back.
I was in disbelief. He is weak, they say. His ability to manage extending and flexing muscles is out of balance, they say. He will experience delays across the board.
Yet I had just watched him roll.
I placed him right back on is belly to determine if it was more of a fall / fluke.
He rolled over for a second time.
Mima emerged and I told her what had happened.
I placed him on his belly and for a 3rd time, and this time for another witness and with a little more effort, he rolled over for a 3rd time.
We got our cameras ready, and put him on his belly again. I could tell he was tired. It seemed he didn’t have enough strength to make it happen again, and we were content with the fact he has rolled 3 times. But he put on his game face, and made it happen one more time:
You can probably guess what I did next…it was L’s turn to try. He is bigger, heavier, and not as mobile as N. I wasn’t sure if he could do it…but he did it too. It was only once…but it happened.
The last time I recall anyone discussing rolling over was at our first care conference when the neurologist warned J and I that most Liss babies reach a developmental ceiling at the point where they are smiling and rolling over.
The boys hit that milestone at the ripe old age of two months / adjusted to 3 weeks. According to my notes, K didn’t even do that until he was over 4 months old.
Maybe the boys are almost done developing and we will still be celebrating the occasional roll months from now. I certainly am aware that is possible. But to me it feels like we’re at just the start of a lot of amazing things.
Game Faces on.
What amazing little boys! I have got to get out there for a visit!!
I’m smiling laughing and crying with you! These boys are motivating me to continue my prayers and to be their warrior!
Wendy Floyd said:
Thank You for this post! I needed to see and hear it this morning ! Life isn’t easy or sometime play time. We have to put our Game Face on! God Bless You and All Your Family!
Sent from my iPhone
Jessica Bernard said:
I love it! God is so good. Keep those “game faces” on, you have so many praying for you guys. Love you.
Jeanne Snyder said:
This. is. awesome. To God be the Glory…that’s how they roll!
Darlene Allen said:
It was wonderful to read this. Those sweet boys have been amazing since the day they were born, and even before.
Kathy Davis said:
Wonderful! Enjoy what you can while it happens! God is good.
This post made me smile and praise God for all his goodness! What a blessing these boys are to this world. N and L are so lucky to have you as a mother!
Sheila Blevins said:
It’s as if they are saying – Look what I can do! I am simply amazed at our God and His continued blessings. You roll little guys! I am waiting anxiously for your next milestone.
Way to go N and L!!! Amazing boys, amazing parents, amazing GOD!!!!
Ann Mounce, Eubank church family said:
Wow ! Wonderful news ! So happy ! The little guys are stronger than we knew ! Praise The Lord. 🙂
Aunt Jen said:
Oh. My. Goodness. SO very exciting!!!!
Pamela Surber said:
These two amazing bundles of joy have had their game faces on from day 1. We don’t know what God has planned for their lives and just how many lives they have touched in the last 2 months. God picked the perfect family for them. Love you…….God is good……
Sharon Morrow said:
That is fantastic. You never know what God has in store. God is so good. Looks like they have their game faces on all right.
Keep up the great work N and L! Hopefully they’ll keep surprising everyone!