• The Diagnosis
  • Twin Timeline
  • Us

Mama Laughs

~ Aspiring to be a Proverbs 31 woman includes laughing at the days to come. I'm starting by laughing at myself. Join me!

Mama Laughs

Monthly Archives: May 2014

Yes, we ARE crazy

27 Tuesday May 2014

Posted by Mama Laughs in Uncategorized

≈ 4 Comments

I typed this a couple of weeks ago and it is already old news…but I’ll start with this and update you on other aspects later.

*********

We have some (non-baby related) news.

I’m just going to blurt it out because there’s a lot I want to say afterward.

We’re moving.

Not just houses.  But also towns.  States.

To most of you that’s not a big deal, because you only read about us on here anyway.  But it was a huge decision that we did not take lightly.  So I’ll be my wordy self about it:

1)      It is career related, and it will be a fantastic move.  J is getting an unbelievable opportunity and I couldn’t be more proud of him.  I am also thrilled to get some more industry related experience so that I can get to know our business better.  We are returning to some familiar faces, and familiar territory.  So in all of those ways, we are thrilled, and looking forward to the changes and challenges ahead.  It was the right career move.

2)      On a housing note…we had been trying to decide what to do about our home.  We love it.  We have invested in some changes like a patio, basement upgrades, built ins.  It COULD be a forever home for us if we needed it to be.  But it is not the right home for the twins.  They are obviously not developing on track, and even with the most positive of attitudes and hopeful prayers, I cannot conceive of them walking soon.  We need a ranch.  I know families live in two story homes all the time.   But this is about more than the fact we’re carrying still small babies up and down stairs constantly.  They depend on us for everything, including every drop of milk, every position change, being there to keep an eye on them in case they get their face turned in to their surroundings, or spit up unexpectedly and need help clearing their mouth.  I want us more centralized in general.  So we’ve been looking at ranches in case the right one pops up.  But financially the numbers weren’t working.  Moving is expensive.  And closing costs, realtor costs, all of that cut in to what little we felt we could add in to our current home equity to try to improve the situation for the boys.  We weren’t in a hurry, so we had time to wait on the right home, and for our financial options to improve.  But along came this opportunity.  An answered prayer, just not in the form we had anticipated.  We can now purchase a home with the boys in mind.  We can work hard to create the right environment in which they can thrive.

3)      On a medical note…we are well established with the Children’s hospital 2+ hours away.  It is highly respected, and since we knew of the boys’ condition before their arrival, we chose our delivery location just so we could ensure they were treated at Children’s.  We trusted them then.  We trust them now.  And we will miss them.  Before accepting any change, we scoped out the medical facility options nearby.  I was pleased with how many great options were within 2 and a half hours, and was particularly surprised to see that the #2 in pediatric neurology would be an option.  So while we will be sad to leave our current team, we do not feel we are making a decision that will compromise the boys’ care.  We simply would have said “no” if we felt that was the case.  There will be a learning curve, and an influx of initial appointments to get to know each other.  But in general, we feel this is also an acceptable change for the babies.  And part of me is looking forward to fresh perspectives and current imaging despite the pains of change.

4)      On a personal note…despite all of the above and knowing deep down this is the right thing to do…I’ve cried multiple times.  But not about new work challenges, not about the task of finding the right house, not about the stress of the endless list of changes that need to be managed ranging from specialists, pediatricians, state based early intervention, church, day care, etc. I’ve cried about leaving what has to have been the most amazing support team anyone has ever had.  That includes family, friends, neighbors, a church life group, day care staff and especially coworkers.  I’ve bragged on them before and I’ll do it again.  They have held me up.  They have taken our boys in as their own.  I’ll tell you another time how my coworkers are making May a special month for me.  But for now I’ll just say…I already miss them.

I can count on zero fingers the number of times I’ve said in the last few months “I wish I had more to stress about” (Hint: it was zero times).   But in my own weird way, I’m excited by the challenge of making all of this work.  We’ve scoped out available houses.  We’re on the day care wait list.  We’re beginning the process of getting established with a new medical team.  Our house needs organized badly before we list, after months’ worth of “I’ll get to that later”, the beauty of it is hidden behind piles of forgotten to do lists.  But we’ll get there.

All that said, we are very enthusiastic about some of the possibilities ahead of us.  Lots more to come on this!!  Stay tuned!!

Advertisement

Brotherly Love

23 Friday May 2014

Posted by Mama Laughs in Uncategorized

≈ 4 Comments

I recorded this video last night.  The audio is horrible.  Maybe I’ll eventually learn not to mumble inaudibly, but in the meantime, here’s what you SHOULD have heard me explaining:

 

I am sitting in a chair holding Landon on my right and Nolan on my left.  Landon is awake, Nolan is sleeping (and breathing loudly).  Landon lifted his left hand and started reaching toward Nolan.  He kept grabbing at his hand in particular.  Little moments like this may seem insignificant if you don’t know the boys much in person.  But when you are aware of how infrequently they move…this is clearly a sweet loving gesture from one special brother to another.

Here’s the link…

https://www.youtube.com/watch?v=S7uXD5JLcgA&feature=youtu.be

 

 

8 Months!

22 Thursday May 2014

Posted by Mama Laughs in Uncategorized

≈ 2 Comments

L and N are 8 months old! (6.5 months adjusted)

L:

Weight – 17 lb 14 oz  Wow!

Food – Six 5-6 oz bottles per day.

Accomplishments – Improved head control, more throaty sounds!

Likes – Snuggling, and a good firm butt pat!

Other – Wearing 9 month clothes (and some hand me down 12) and size 3 diapers.  He wakes up around 3:00-4:00 fairly often but settles back in quickly after a bottle.

N:

Weight – 14 lb (Wahoo!!!)

Food – Goal of Six 5-6 oz bottles per day.  He drinks most of that!

Accomplishments – Improved head control, more grasping.

Likes – holding rings or toy keys in his hands, snuggling, and baths

Other – Wearing 6-9 or 9 month clothes and size 3 diapers.  He has been sleeping great!!

Moments I don’t want to forget:

  • K growing even more as a big brother
  • Impressing their local outpatient PT
  • Fantastic school pictures (I’ll share those sometime)
  • L reaching for N’s hand (video coming)

And now…their 8 month photo shoot!

 

DSC_0036 DSC_0044 DSC_0062 DSC_0079 DSC_0089

← Older posts

Visit us on Facebook!

Visit us on Facebook!

Search

Archives

  • May 2021
  • April 2021
  • March 2020
  • November 2019
  • October 2019
  • September 2019
  • August 2019
  • July 2019
  • April 2019
  • March 2019
  • September 2018
  • May 2018
  • September 2017
  • February 2017
  • October 2016
  • September 2016
  • August 2016
  • July 2016
  • June 2016
  • May 2016
  • April 2016
  • March 2016
  • February 2016
  • January 2016
  • December 2015
  • November 2015
  • October 2015
  • September 2015
  • August 2015
  • July 2015
  • June 2015
  • May 2015
  • April 2015
  • March 2015
  • February 2015
  • January 2015
  • December 2014
  • November 2014
  • October 2014
  • September 2014
  • August 2014
  • July 2014
  • June 2014
  • May 2014
  • April 2014
  • March 2014
  • February 2014
  • January 2014
  • December 2013
  • November 2013
  • October 2013
  • September 2013
  • August 2013
  • July 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • February 2013
  • January 2013
  • December 2012
  • November 2012
  • October 2012
  • September 2012
  • August 2012
  • July 2012
  • June 2012
  • May 2012
  • April 2012
  • March 2012
  • February 2012
  • January 2012
  • December 2011
  • November 2011
  • October 2011
  • September 2011
  • August 2011
  • July 2011
  • June 2011
  • May 2011
  • April 2011
  • March 2011
  • February 2011
  • January 2011
  • December 2010
  • November 2010
  • October 2010
  • September 2010
  • August 2010

Catching up!

Check these out…

#motherhood #twoifbyfaith #pictureday #ironic #twinbabynames absent csp acc ACTH activity table balance birthday C25K choose life Clubhouse Climber collie CPA dandy walker display art Easter egg hunt echo ekg failed nst First Birthday Part gender reveal green easter eggs rule happybirthdaytwins herochallenge ikea illness infantile spasms in utero diagnosis It is well kids recipes Kura latt life list lissencephaly mamalaughs medical abortion mini pizzas Mod Monkey monthly mothers day craft mri results mysterylaundry NICU non stress test no termination nst onesie stickers Pinterest pizza casserole potty training prayer prayer calendar pregnant PT second opinion Seizures shamrock shakes sneaky veggie sneaky veggies sneaky veggy special needs seating special tomato chairs spinach cupcakes Step 2 suckers are great distractions superhero therapy toddler art wall toddler boy room torticollis twins twoifbyfaith wilbarger protocol zucchini tots

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 430 other subscribers

Recent Posts

  • Landon’s Service
  • Celebration of Landon
  • Mom Alarms
  • Landon: Long Hill
  • Diagnosis Anniversary – A Girl on a Mission

Archives

  • May 2021
  • April 2021
  • March 2020
  • November 2019
  • October 2019
  • September 2019
  • August 2019
  • July 2019
  • April 2019
  • March 2019
  • September 2018
  • May 2018
  • September 2017
  • February 2017
  • October 2016
  • September 2016
  • August 2016
  • July 2016
  • June 2016
  • May 2016
  • April 2016
  • March 2016
  • February 2016
  • January 2016
  • December 2015
  • November 2015
  • October 2015
  • September 2015
  • August 2015
  • July 2015
  • June 2015
  • May 2015
  • April 2015
  • March 2015
  • February 2015
  • January 2015
  • December 2014
  • November 2014
  • October 2014
  • September 2014
  • August 2014
  • July 2014
  • June 2014
  • May 2014
  • April 2014
  • March 2014
  • February 2014
  • January 2014
  • December 2013
  • November 2013
  • October 2013
  • September 2013
  • August 2013
  • July 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • February 2013
  • January 2013
  • December 2012
  • November 2012
  • October 2012
  • September 2012
  • August 2012
  • July 2012
  • June 2012
  • May 2012
  • April 2012
  • March 2012
  • February 2012
  • January 2012
  • December 2011
  • November 2011
  • October 2011
  • September 2011
  • August 2011
  • July 2011
  • June 2011
  • May 2011
  • April 2011
  • March 2011
  • February 2011
  • January 2011
  • December 2010
  • November 2010
  • October 2010
  • September 2010
  • August 2010

Categories

  • Baby
  • Echos
  • family
  • Flight School
  • genetics
  • illness
  • K Noms
  • Letters
  • life list
  • Lissencephaly
  • Milestones
  • Monthly
  • Notes to self
  • Nursery
  • Pinterest
  • Prayer
  • pregnant
  • Pulmonary Stenosis
  • Quiz
  • Random
  • Recipes
  • Seizures
  • Special Needs Mom
  • therapy
  • Throwback
  • travel
  • tuba1a
  • twins
  • Uncategorized
  • Wordless

Stats!

wordpress stats

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 430 other subscribers

Two If By Faith

Two If By Faith

Catch up!

Search Amazon

Check out these popular toys

Blog Stats

  • 563,928 hits

Search

  • Follow Following
    • Mama Laughs
    • Join 418 other followers
    • Already have a WordPress.com account? Log in now.
    • Mama Laughs
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...