Look who I have!

 

Well that isn’t a helpful clue in this instance.  It’s Nolan!

 

 

Nolan was discharged this afternoon.  He didn’t travel far.  For his first taste of freedom in nearly a week, he wanted to travel down the hall and visit his brother.  We toyed with getting a hotel room if we needed to, but the hospital staff was very supportive of us all staying together.  They get it.  In fact, they provided a place for Nolan to sleep so we can stay in Landon’s room!

 

We are getting in to the new routine.  You shouldn’t be surprised by this, but there is a spreadsheet.

 

Nolan was (and Landon will be) discharged as 100% NG fed.  We are to continue with that until they can pass a video swallow/Barium study.  I  have taken care of his last two feeds, and it went really well.  If I were having to feed him by mouth right now, I’m not sure how much he would wake up to take.  It is incredibly comforting to know we can keep him hydrated and fed without exhausting him during his few waking moments.

 

I’m not the only one getting back to business.  Nolan is getting back in the grind as well.   We’re back to the stretch routine during diaper changes, and he’s exercising.  Here he is doing pull ups in his sleep.  Ok, so it’s more of a grasp.  But still cute.

 

It feels good to all be in the same room.  It also feels VERY good that Landon is making progress.  He has still spit up some today, but he is also keeping some down.  They have scaled back the IV, and are going to remove it soon if he keeps improving.  He has advanced beyond pedialyte, and is now drinking some formula again.  Progress.    And with a cheerleader like Nolan by his side, I know he will pull through soon.

 

Soon.