Hello from the corner! You’ll see what that means later.
Here’s today’s update:
During morning rounds, they decided to put Landon on BiPAP. He was holding his oxygen levels high enough, but his heart rate was elevated. In a kid like Landon, they may not always show you physically how hard they are working, so you have to watch for other signs. Since going on BiPAP his heart rate is back in a more normal range, and he is clearly more comfortable. They’ve been able to lower his rates throughout the day, so he’s still headed in the right direction, but this is helping force a few deep breaths.
They did an ultrasound on his lungs to better assess the fluids. They are saying plural effusion, with signs of what is or would be pneumonia (mild), particularly in his right. I believe the assumption is still that he had an acute event, likely a seizure, which led to aspiration. We seem to have gotten him in early enough that it wasn’t severe yet.
He’s getting IV fluids, and is a little puffy. He’s had a lot of hand, arm, leg, and foot massages from mama today. He has not complained about that, and we make sure to reposition him often.
He is surrounded by handsome photos as you’ll see below. And we even watched videos of him and his brothers today so he could listen to some familiar sounds. His favorite seemed to be a video of himself enthusiastically eating green beans. ?
As for me, I kept up with a little work, got a little fresh air at lunch time, but spent much of my day in the corner you see behind his bed to the right. Tight quarters. Thankfully it is good company. J
I drank more caffeine today than I’ve had in all of 2015. That’s no exaggeration; I had given up coffee and soda. Until today. (Whoops).
Speaking of how I filled my time, I finished one crochet hat, and started and completed a second one! My motivation was that I was missing crochet night back home. The crew got together and when you stack up their recent hard work with tonight’s lesson, there are some very exciting things happening! You ladies are awesome!
And speaking of exciting things…Landon and I ended our evening with a good long cuddle!! Looking forward to our next imaging and to hearing about progress tomorrow.