Isabella made it home a few moments ago. During her unexpected but incredibly productive hospital stay she was evaluated by neurology and rheumatology. They diagnosed her with juvenile dermatomyositis. (JDM)
Her blood work wasn’t particularly remarkable, and her age of onset was an early outlier, but her muscle MRI and muscle biopsy told a clear story.
They gave her IV steroids each day, with oral steroids continuing at home. She was also given two doses of IVIG.
PT evaluated her and is helping set us up with a gait trainer.
Speech evaluated her and with recent weakness in her neck as well as her swallow function she’s aspirating on thin liquids, so we will thicken a little until she regains her strength and coordination.
We are relieved and thankful, more than I can possibly express, to have a path forward, and a treatable answer.
Thank you for your prayers and encouragement! Get ready to watch this girl soar!
Joyce Manson said:
Precious girl! Waiting to see what God does!
Betty. Ooke said:
Amen! Prayers answered
Ben Caldecott said:
Your Twins are such sweethearts. From Canada
Lisa Collins said:
So glad you all have an answer and can help that precious little girl get better! Many continued prayers for her and you all!
Nancy Arnold said:
Oh my Rinker Family ,I am so thrilled with this good news…..May God continue to Bless Isabella, with lots more daily, weekly, monthly improvements….Praying constantly, when I think of her throughout the day and at night….Praying for strength for the whole family…….Nancy
Roberta Hansen said:
God is good. Your baby girl is home, and you have answers with a plan. So happy for you.
Madonna Ormsby said:
Wonderful! Praying the blessings continue to flow..
This is such good news!! God is so wonderful! I’ll continue to pray for Isabella and your family.
Mary Burkett said:
Kathy Davis said:
Good news. My prayers continue.
Debbie McGlone said:
So great full for answers and plan to move forward. Prayers will continue. Wayne and Debbie MvGlone