We had another weekend full of visiting family and friends.  These little fellas are quite a hit!

I tried to divide my time between the NICU and playing with K, so I didn’t get pictures of everyone.  (Not pictured below are Pop and Nan, Matt and Rachel, & Bob and Nancy).

Specials thanks to Pop and Nan, and Papaw and Nana for keeping K entertained when I needed to be elsewhere.  And to Nana for keeping me company this last week as I gained more strength and independence.

There were no big updates from the weekend. Both boys are absolutely precious, and starting to stir a tiny bit more.  L in particular really seemed to perk up some tonight.  He had his eyes open and looked around for about 30 minutes this evening.  I stayed later than I had planned so I could stare at him.  I can NOT get enough of these guys.

Speaking of no big updates, I think we’re past the point where big things will happen every day, so I will stop the daily updates.  I’ll still post plenty of photos, significant news, and probably weekly updates.   I’ll spend more time on random posts, and less on technical updates.   Thank you for caring about and praying for our boys.

Here are a few of L and N’s fans!

Aunt Auburn with N

Uncle Kevin with L

Papaw telling stories to L and K

K loves to hold their “ittle hands”!

Busy big brother

Cheese!

More hand holding (N)

Singing Itsy Bitsy Spider to N

Andy and Karna with L

L needed a kiss!

Bradley met the boys!

Reading Engine that Could.

Cuz!

Buzz Light Year getting ready to color.

Time for a wagon ride!

I tried…

❤ Daddy with N

Papaw racing L to sleep

Follow the blue path!

Mommy creating some tummy / snuggle time with N

Nana loving on L

Wide Eyed L!!

Today was mostly filled with cuddles and smiles.

We did have an update from neurology.  To be honest, I’m having trouble sifting through the information we’ve gotten from 3 different teams.  If you’ve tried reading each post and are confused by whether or not we’ve made progress on the sub clinical seizures…well…I’m confused too.  Today’s discussion was that we were successfully treating clinicals seizures, but hadn’t made real progress on the sub clinicals.  Meanwhile, last weekend we were told the seizures were happening all over their brain.  And this week we were told by a different crew they were only in the lower left area.  So if both assessments were true, I would argue we did make progress.  We’ve also been told at various times that each of the 3 medicines did help, even if only a little.

That’s where Monday’s meeting will be helpful.  At 2:00 we’ll recap the last 9 days of testing and medicating to find out how our main neurology contact feels about the progress.

Until then, this weekend will be filled with visiting friends and family.  Unlike last weekend, the boys are EEG free and ready to be held!

Here’s a look at day 18.

Pop and L

L: “Shhh, don’t tell anyone in Kentucky about this hat!”

Accidental Buckeyes

Nan and N

We were also thrilled when daddy arrived.  K will be up to visit tomorrow as well.  I’m looking forward to a weekend with our whole family together!

Daddy’s back!