The time has come. Seeing two pink lines, two beating hearts, and hearing two very hard diagnoses all feel like they happened a lifetime ago. Or yesterday. It’s hard to explain how time passes when you’re living in a vacuum of worry.
The boys will be here tomorrow. TOMORROW. All the wondering, the hoping, the praying, the pleading will take a different form. Or maybe it won’t. I suspect come Wednesday, next week, and October we’ll be wondering, hoping, praying and pleading as well. But we’ll be doing it with a hopeful eye on these precious boys rather than on a growing belly.
Justin and I have talked quite a bit about most likely scenarios, what we think will happen, how things will go, etc. We have a feeling tomorrow will be surprisingly routine. That the boys will have some basic breathing and feeding goals, as could any newborn 34 week baby. And that key early concerns will be over their lateral ventricle measurements, and whether or not a shunt is necessary now…or just something to keep an eye on for later. We also suspect that while it will be so great to have them here, that we will still be on hold as to how much they are impacted by things. It will take a few days to get a good MRI and reading. Still more days to get full assessments on the boys. It could take weeks to get back all of the blood work that might help us hone in on a specific cause or syndrome. And it might even take months to see true delays start showing up. To learn whether or not their brains will be overtaken by seizures. To determine whether their situations are so severe that one day, far too soon, they will leave us.
Regardless of how unknown this journey remains, we are ready. Ready to continue on it hand in hand with them.
So what does one do the night before your life changes forever?
At a minimum, I’m about to become the mom to 3 boys. That in itself is life changing, as I’m sure any mom to 3 kids will attest.
And we’re either going to witness a miracle, or take part in a lifelong fight.
Either way, it is safe to say, this household will never be the same again.
So the answer to what we do…is eerily familiar to what we’ve done for weeks now. We wonder. We hope. We pray. We plead. And we wait.
Helen said:
Thank you for the update. I will be praying and thinking about all of you as you go through tomorrow and the next several days. Your picture is beautiful and you look so radiant. Gods Hands are with you and your family.
gary strawn said:
You are ALL in our hearts and prayers. We love you and so very proud of who you are and who you will become!!!.
Brandi said:
Know that you ALL will be covered in prayers tomorrow and in the days ahead. May the Great Physician continue to do a mighty work on those sweet boys! Hugs.
Jeanne said:
We unite ourselves with you in wonder, hope, prayer, pleading, and waiting. It is finally time to meet L and N…Birthday Blessings…to God be the glory…
Brenda said:
Praying for you and your family; He has you — right in the palm of His hand. No better place to be. Will have you FIVE on my mind and in my prayers all day tomorrow.
Debbie said:
M – From here in South Florida (Lori Nuriu’s Mom, Debbie here), I want you to know that we have you and your precious family in our deepest prayers. Please know that our Heavenly Father has you all planted firmly in the palm of his mighty hands. He is the ultimate Physician and nothing is out of his realm of capability. May he guide you and J and all of the various doctors through these most unsettling, trying of times and give you peace, strength and great encouragement. God bless you M. God’s speed to Landon and Nolan. Blessings!
Emily said:
My thoughts and prayers are with your family! Hoping and praying that all is very routine today (or as routine as having twins can be!) and that tests are done quickly and you can all be home soon!
Carolyn Cress said:
Praying constantly. God is with all of you.
Beverlee Dowdy said:
Today IS the day, thank you for sharing……..
God, I pray your continued guidance and strength for N, L, and M’s doctors, specialist, assistants, caregivers, and their families, please hold them tight.
God through you may this family feel the continued flow of love, prayers and hugs from their friends, those they know and those across the united states they have never meet. There is power in numbers! ❤
M and J YOUR strength is amazing……but you know these precious babies are deepening on you, as does K.
Love to each of you!
Sheila Blevins said:
As I write this – L and N may have already entered this world. You have been on my mind since the moment I got up this morning. Praying God’s blessings and miracles for you today and always.
Love in Christ!
Ann Mounce, Eubank church family said:
Lots of love and prayers being sent up !
Edith Hopson (@HopsonEdith) said:
Continuing to keep L, N, and the entire family in my prayers. May God be with everyone involved in this blessing!
Dawn (Martin) Hopson said:
Many continued prayers for the next step in this journey for you and your boys. I am so in awe of your complete sense of let’s do this….we will face what comes with grace. I pray God holds you all close and brings guidance and blessings for the future! Can’t wait for an update on you and the boys!!
Camille said:
I have been praying for you since I first learned of your situation. Please know that today and for the days ahead I pray God’s healing hand will be on all of you and blessings every day. God is a God of miracles!
Brenda Rose said:
Our prayers and thoughts are with your family!!! May God give you the courage, strength, and His love that is needed now and in the days ahead!!!
Ella Lucky said:
You are an amazing family!!! We will ALL be praying for you and your precious little ones!!! For your WHOLE family!!!
Sharon Morrow said:
Melody, you all have been in my thoughts and prayers for quite sometime. Your mom told me about the babies’ diagnosis and as you may know we have twin boys with cerebral palsy. When they were born at 24-1/2 weeks we weren’t given much hope for them. But we refused to just take it at face value and decided we would take it day by day and do the best we could each day. Doctors aren’t always right. They do get close sometimes but when God is in control, anything is possible. No, our boys aren’t perfect in most people’s eyes, but in our eyes they are. They have defied a lot of the odds that the doctors said they wouldn’t be able to do. They have surprised us so many times and still do. You just have to live each day to the fullest, no matter how crazy it can or will be. Twins in itself is a lot to deal with, not to mention special needs. Just keep your faith strong and God will lead you through it. I know he has, I don’t know what we would have done at times if not for our faith in God. I’ll be praying for you all. Our children really are a gift from God.
Jeanette Osborne Wilson (Lonnie) said:
I just got on your blog after talking to Gibby and Mary Ann, also my sister Joyce and husband Bob (Halsey). Also seeing a prayer request on Stephanie’s facebook about the twins. Lonnie and I will be pulling for you during the next few weeks. Twins are such fun, but also work!!!! 🙂
Jeanette Osborne Wilson
John-Nancy Arnold said:
As we sit in Nashville tonight…our thoughts and prayers are with you….as we watch our 2 gr-grandsons playing, I think about you as well as your parents and grandparents? and Kaye and Gary…. Buck and Sudie…Dee Dee and Steve…..tomorrow will be a bitter-sweet day for us all….We’ll be thinking of you and praying for you all…<3 ❤